• Resource Guide for Chromosomal Abnormalities

    RESOURCES

    Address:4301 Connecticut Avenue, NW, Suite 404Washington, DC 20008

    Phone:1-202-966-5557

    Internet address: http://www.geneticalliance.org

    Description of services provided:The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

    RESOURCES

    Address:PO Box 872Pine, CO 80470-0872

    Phone:1-888-999-9428

    Internet address: http://www.genetic.org

    Description of services provided:This website provides support services, a newsletter, and information about sex chromosome variations.

    RESOURCES

    Address:1275 Mamaroneck AvenueWhite Plains, NY 10605

    Internet address: http://www.marchofdimes.org

    Description of services provided:The March of Dimes provides information on pregnancy and birth defects and gives referrals.

    RESOURCES

    Address:666 Broadway, 8th floorNew York NY, 10012

    Phone:1-800-221-4602

    Internet address: http://www.ndss.org

    Description of services provided:The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

    RESOURCES

    Address:330 North Wabash Avenue, Suite 2000Chicago, IL 60611

    Phone:1-312-321-6834

    Internet address: http://www.nsgc.org

    Description of services provided:On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

    RESOURCES

    Address:2982 South Union St.Rochester NY, 14624

    Phone:1-800-716-7638

    Internet address: http://www.trisomy.org

    Description of services provided:This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

    RESOURCES

    Address:11250 West Road, Suite GHouston TX, 77065

    Phone:1-800-365-9944

    Internet address: http://www.turnersyndrome.org

    Description of services provided:The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

    RESOURCES

    Address:P.O. Box 268Lakewood CA, 90714

    Phone:1-888-970-0777

    Internet address: http://www.fivepminus.org

    Description of services provided:This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

    Revision Information

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