• Resource Guide for Chromosomal Abnormalities


    Address:4301 Connecticut Avenue, NW, Suite 404Washington, DC 20008


    Internet address: http://www.geneticalliance.org/

    Description of services provided:The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.


    Address:11 Keats CourtCoto de Caza, CA 92679


    Internet address: http://www.genetic.org/

    Description of services provided:This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations.


    Address:1275 Mamaroneck AvenueWhite Plains, NY 10605

    Internet address: http://www.marchofdimes.com/

    Description of services provided:The March of Dimes provides information on pregnancy and birth defects and gives referrals.


    Address:666 Broadway, 8th floorNew York NY, 10012


    Internet address: http://www.ndss.org/

    Description of services provided:The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.


    Address:233 Canterbury DriveWallingford, PA 19086


    Internet address: http://www.nsgc.org/

    Description of services provided:On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.


    Address:2982 South Union St.Rochester NY, 14624


    Internet address: http://www.trisomy.org/

    Description of services provided:This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.


    Address:231 W. Park Ave.Sellersville, PA 18960


    Internet address: http://www.triplo-x.org

    Description of services provided:Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition.


    Address:14450 T.C. JesterHouston TX, 77014


    Internet address: http://www.turnersyndrome.org/

    Description of services provided:The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.


    Address:P.O. Box 268Lakewood CA, 90714


    Internet address: http://www.fivepminus.org

    Description of services provided:This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.


    Address:5700 Midnight Pass Rd., Suite 6Sarasota FL 34242


    Internet address: http://www.pwsausa.org

    Description of services provided:The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.

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