32724 Health Library | Health and Wellness | Wellmont Health System
  • Talking to Your Doctor About Myelodysplastic Syndrome (MDS)

    You have a unique medical history. Therefore, it is essential to talk with your doctor about your personal risk factors and/or experience with MDS. By talking openly and regularly with your doctor, you can take an active role in your care.

    General Tips for Gathering Information

    Here are some tips that will make it easier for you to talk to your doctor:
    • Bring someone else with you. It helps to have another person hear what is said and think of questions to ask.
    • Write out your questions ahead of time so you don't forget them.
    • Write down the answers you get, and make sure you understand what you are hearing. Ask for clarification, if necessary.
    • Don't be afraid to ask questions or ask where you can find more information about what you are discussing. You have a right to know.

    Specific Questions to Ask Your Doctor

    About Myelodysplastic Syndrome
    • What type of MDS do I have?
    • This certainly is a complicated group of diseases. What can I do to help myself through it?
    • What sources of information do you recommend—library books, websites, other doctors?
    • Should I see a specialist in bone marrow transplantation soon after my diagnosis is made so I can learn more about the disorder?
    About Treatment Options
    • Please keep me well informed of my treatment options so that I may be an active partner in making decisions.
    • Do you recommend I seek out a center that specializes in treating this disease?
    • Where do you recommend?
    • What treatments do you recommend?
    • What are the side effects that I should watch for?
    • What can I do to minimize these side effects?
    • What are the risks and benefits of my treatment options?
    • Do you recommend any of the treatments, such as AzaC?
    • Where can I be treated with AzaC?
    • Should I participate in clinical trials for this condition?
    About Lifestyle Changes
    • Please follow me along with input from my loved ones so that we may anticipate necessary changes in my lifestyle and living circumstances.
    • Let us know as early as possible when we should contact hospice care.
    • Is my nutrition adequate?
    • Are there any activities you recommend I stop, like driving, or commence, like an exercise program?
    About Outlook
    • It would be helpful to have some idea of how long I have to live, though I know that no one can predict the future.
    • What sort of symptoms can I expect to experience?

    References

    Castro-Malaspina H, O’Reilly RJ. Aplastic anemia and the myelodysplastic syndromes. In: Kasper DL, Harrison TR. Harrison's Principles of Internal Medicine. 14th ed. New York, NY: McGraw-Hill; 1998.

    Silverman LR. Myelodysplastic syndrome. American Cancer Society website. Available at: http://www.nci.nih.gov/cancer%5Finformation/ . Accessed November 30, 2002.

    Revision Information

  • Join WellZones today.

    Make a Change For LifeLearn more

    Wellmont LiveWell is creating a new tradition of wellness in the mountains by providing individuals with tools and encouragement to live healthier lifestyles.

  • HeartSHAPE Spotlight

    At risk for a heart attack? Learn more

    Fight heart disease early and prevent heart attacks with HeartSHAPE® - a painless, non-invasive test that takes pictures of your heart to scan for early-stage coronary disease.

  • Calories and Energy Needs

    Calorie NeedsLearn more

    How many calories do you need to eat each day to maintain your weight and fuel your physical activity? Enter a few of your stats into this calculator to find out.

  • Ideal Body Weight

    Ideal Body WeightLearn more

    Using body mass index as a reference, this calculator determines your ideal body weight range. All you need to do is enter your height.

  • Body Mass Index

    Body Mass IndexLearn more

    This tool considers your height and weight to assess your weight status.


  • Can we help answer your questions?

    Wellmont Nurse Connection is your resource for valuable health information any time, 24 hours a day, seven days a week. Speak to a Nurse any time, day or night, at (423) 723-6877 or toll-free at 1-877-230-NURSE.